it's the weekend

I'm feelin much better than I did on monday! Made it to work for the rest of the week, this past week. Felt a little down yesterday so stayed home and just read the new Harry Potter book allllll day and night long. I finished it at about quarter to 5 this morning lol. But it was sooooo good!!!! ok thats all I'll say about it! so good!
went to the diner with the boys (roomies) this afternoon. Its raining off and on today. Lightening and thunder off and on. Seems to have stopped now, though I'd like it to continue. I like thunderstorms.
Nothin really new to report, just thought I'd drop a new post is all.

Ugh sick

I guess it was due, I finally got sick. Spent yesterday morning with my head in (ah not the toilet) the sink actually, only cuase I didn't have to bend over as much and could just leave a constant run of water. Spiked a fever. got up to 100.9. Was going to go in to the doc early (was already planning on going in the afternoon for a shot) made it to the couch and crashed there for a few more hours. Man it sucked. I finally made it over to the docs around 2:30ish. Saw the nurse for my shot and told her what happened. She didn't like the idea of having a fever with the chemo. I said i didn't like the vomiting! Especially when you don't really have anything in you to get out! So she gave me my shot, almost painless,the best shot i ever got! Then sent me up for bloodwork. I didn't get any calls and showed up this morning. Fever is gone, went away on its own. Now I'm just very sore through the ribs from all the upchucking. Still feel off but better then yesterday!

two days later

well tis the sunday after chemo and I'm really not doing much for a change. I feel usually i've been going out and runnign around the saturday and sunday after but not this time. I have totally vegged this weekend. Minus the laundry that i'm doing now lol. Although I must say, i think becuase they pushed the drugs faster this time around, i feel side effects quicker. I never felt crappy on the saturday after (except tingling) and i felt yucky yesterday. Just a general achy in the chest, maybe it's the drugs killin cancers ass off. Sounds like a good idea to me. Then my face got sooooo red, i was like a tomatoe! And it spread into my arms too. Now i've checked it out before and I get flushed becuase of the decadron (steroid?) but this was crazy flushed. Even my eyelids were all red, and the going down my arms. Just weird and hot. But no fever so it's all good. Not as bad today. My arms are back to normal and it just looks a little red up on the cheekbones.

I must say at least the weather has cooled off! Although I hear it's supposed to get hot and humid again. Yuck! Oh and this Thursday is our company picnic! Always fun to get out of the office and eat burgers with the gang!

On the computer front, my roommate just got a new laptop, with wireless internet hooked up on it. We tried loading up the webkey or keyphrase or password thing into it and it would say connected but with limited capability and wouldn't connect to the internet. Anyone know how to solve that? I'm pretty sure the password is correct, it's the only one I ever setup when i installed the router. So if anyone has a clue that would be great!

well time to check the laundry!

Movin on into cycle 4 treatment 7 down

So I have moved into cycle 4, treatment 7. I've made it over the half way point, as long as I'm on the 6month plan still. After treatment 8 i will have a Petscan and probably a ct scan and other stuff. I'll find out everything that i get a perscription for on the day of the 8th treatment.

I have to say todays treatment flew by and was quicker then previous treamtents. I went in at noon, an hour after last week and the week before. Annnnddd i was done before 3pm and usually i think I was done after 3. Today I more or less slept through todays treatment. I was tired. My leg muscles lately have been feeling like they've been tightening and wanting to stretch all night long. I just lay there stretching and not falling asleep and then end up takin a muscle relaxer and finally going to sleep. But usually after 2am. ugh. So I was sleepy and dozed, hopefully didn't snore! lol. During one point, Priscella uped the speed on the DTIC and i felt the IV move over my hand, woke me up. She just gently said go back to sleep lol. I knew what she did and the next thing I knew she was puttin a new bag on there!

After treatment I,in typical style after treatments, went and saw a movie. Although this time without mom as she flew back home last weekend. I went and saw Hairspray. I have to say it was fun and enjoyable. Some very funny moments and good performances from almost everybody. I'd say don't go into it with the idea of the original movie as it is differnet. Drop my a line if you've seen it and just want to chat about it. There's some fun cameos of actors in the history of the different movie and stage show that are fun and a fun number in the credits (That was in the stage show) you gotta watch to the end to see who it was performed by. Just really fun.

Well the tinglies are starting in my feet now. Guess I really need to get on the regimen of taking the vitamin B, I realy slacked this last two weeks. I'll go mon tue and wed and go get my neupogen shots because i'm too much of a wuss to give it to myself! :) I got that nasty taste in my mouth. it's moved from sickly sweet to just nasty uck. so i'm chompin on sweettarts to help mask that taste!
now I'm currently watching Scott Baio 45 and single. Yeah he's a womanizer (or at least was) adn is kind of a jerky a$$! no wonder he's single. But it is nice to see past girlfriends tell him off! lol gotta love VH1 and their reality shows. Although I did read that one of his friends (the older brother from The Wonder Years who i thnk is a producer/director now) is supposedly setting up the "real life" scenes it it. Just something I read online whether its real or not I dunno. this is just the first episode i've seen lol. Oh and his friend is a jerk too. whether he's acting that way or is that way, geez what an a$$!

it's funny how once you get diagnosed with HD all of a sudden you hear about a hundred other people who now have it, have had it or have just been diagnosed. Before this I think maybe i had heard of 1 person probably a celebrity.

Ok and for my voice teacher who asked why i didn't include this tidbit.... June 8 was our voiceclass. havent been to one since i think jsut before xmas time. ( i should remember when it was as it was at my house last time)Anywyas i decided to go to the class although I hadn't been to a lesson since February, and I havne't really been practicing except for some singing along with the radio ha! so i went to the class. They're always fun, get to catch up with friends not seen in a while, hear everyone sing. I still was thinking I probably wont sing. But a little piece of me wanted to as I did bring some music. And I did end up getting up and singing. the word from my teach was that it as amazing and people were talking to her commenting and complementing it for the rest of the week. So yay for me! Makes me really want to get back in there and sing sing sing sing. So my new news in the singing ring is that I'm creating a show. when i hit the end of chemo will be the performing date. I'm actually thinking Nov-Jan sometime. And profits will be going to CancerCare, their young adult programs. Since I'm hooked up with them and think it's a good organization, has meaning for me.

so thats the skinny for today!
Have a great weekend!

it's me

Just thought I'd post a current pic. This was taken last weekend at the museum :)I'm in the center of a giant clam shell!

arise fair one and come way

Woke up this morning and was still feelin achey in the abs. logged into work email and answered some stuff. Ate some cheerios. haven't had them in a while yummy. Then went back to sleep for a couple of hours while my computer scanned itself and it's thousands of files. Went to the doc. She said it most likely seems to be muscle related and gave me some muscle relaxers. Supposedly they'll make me sleepy. I'll take one later this evening and see how it goes. But at least nothing hurts like it did the other night. ouch! it's in the low 80's i think a little humid but nothing unbearable like previously. The wind is blowing too so thats nice.
Mom leaves to go home tomorrow. Will miss her but it's time. She needs to get back to her life and friends and grandma and auntie.
have a great weekend!

No AC (sorry Atlantic City not air conditioning)

Well starting lastnight today was a bummer. WE didn't get to go to Atlantic City :( Why?? you may ask... well lastnight when i went to get up from sittin on the floor enjoying some chinese food, I had a horrible pain in my abdomen. It was a couple inches to the left of my bellybutton and about an inch and a half up. Felt like a knife trying to cut through the muscle. Not a happy felling. Everytime I would stand up or sit straight up it would happen. So I spent most of the night just layin on my back in bed. Was the only position I didn't feel in pain. My mom decided to email the surgeon of the gallbladder removal as since the surgery the muscle on that side was always the worst feeling. Of course he said it had nothing to do with the surgery as they were on the right side. Then sent me off saying he'd call my oncologist (oh who is on vacation this week lol). So after seeing the surgeon and since this morning I wasn't in as horrible of pain more just a crampy feeling, we went and saw Harry Potter. Thast the bad thing about the dr's offices all being around a movie theater lol. After I went over to the oncologists office and talked to the nurse. She said oh your spleen is over there, but go see Dr Hagloff. Its the other doc in the office. So she called upstairs and I took the elevator up. Long story short, she did some poking and questioning and really didn't come to any conclusion of what it could be. Could be muscle related, could be viral gastrointeritis, but I'll go back tomorrow and tell her how i have been for the rest of the day. It's been feeling like it wants to act up again so i'll go take some more tylenol extra strength. So thats the news for now. Now it's off to bed :)

yeah

Yay it's not as hot today! Yes it's very humid, but not as hot!! My weird queasy off feelin seems to have passed too. Still got a weird muscle pain to the left of my bellybutton, i think i was just rolling around too much through the night and pulled it :(
Had a bout of insomnia lastnight. Took an Excedrin PM and that didn't do anything then took an Ativan around 4:30, finally napped a little, but still waking up at 5 somethin then 7ish and off and on till about 8:30.
A bit sleepy today but not too bad, probably will nap later and that will probably screw me up for tonights sleep lol
well back to work
peace out!

Its Too Damn Hot!

It's too hot today for sure! I haven't even gone outside but our hallway radiates heat and it's hot in there. I did go down in the stairwell today to open the door to Nic droppin off some stuff to me. And just opening the door felt the heat. I heard 100 degrees (was forcasted yesterday for today) and was like ick. Think i dehydrated myself over the weekend and started feelin queasy yesterday and still today. So add the heat on top of that and I decided to stay home and not even try to go into work today. Still feelin a little queasy but it's gettin better.
Kelly over at www.chemopalooza.com posted this link about a Times Magazine article with voting for the best website. I'm Too Young For This is listed on there. It's a cancer resource for young adults under 40. They also had a release of a cd with cancer patients work on it!

Stay cool

Bummer no mythic creatures

Well bummer, we tried to go to the mythic creature exhibit at the museum but it was all sold out! :( so we roamed around the regular museum stuff. Snapped shots of the giant whale,dinosaurs etc. long day. Ate at a little BBQ joint called Brother Jimmy's. Was tasty and they have appreciation days. Tuesday is their teacher appreciation day and wednesday if you have a southern ID you can get 25% off. they also have a wednesday white trash feast night. all you can eat for 2hours of white trash food lol. Basically anything full of fat! BBQ ribs, Mac N Cheese, meatloaf etc. Was a cute fun place up on 80th and Amsterdam. Just roamin around the museum and walkin to trains to get home, whew i'm sleepy now!!
On the chemo side effect front, Arms were tingly lastnight but held off on moving to the hands till around 11ish. Though i also started feelin naseaus (probably all that frozen yogurt i had lol) but I did take a zofran an it worked! Hands were tingly when I got up this morning and finally subsided around 3-4. Which is good. Think i'll keep up with the Vit B and the multi vit. They seem to make it shorten so yay! Other than that just sleepy. Oh and my face is gettng all flushed again from the steriods. Looks rather funny with my cheeks getting so red like i put too much blush or something lol.
ciao

Chemo #6 down!

Well today was chemo #6 really #7 but since i missed one from the gallbladder surgery it's #6. Hopefully soon is a Petscan, but since i had that surgery the nurse thinks it will be a little while yet before i get one. Probably at least not for another 2-4 treatments.
After chemo went for lunch. If you're in the city on the mid east side, head on over to Vezzo for some thin crust pizza. yummy yummy yummy!! It's on 30th and 3rd. Then we headed over and saw Live Free or Die Harder. We enjoyed it. Gotta love bald Bruce Willis and Justin Long! Guess thats the schedule now after chemo, getlunch and catch a movie. Although when mom leaves guess that will probably change, unless anyone out there had a friday afternoon off and whats to meet up with me :)
leave a me a comment or two and let me know or even if you can't. Hard to tell if anyone at all is reading except for Kelly (thanks Krazzy!) Though it's good for me to do this even if i get no comments lol. Got some tingling in the arms, but hasn't hit the hands yet, so i'm hopin it holds off and the vitamin B and multi vitamin i've been taking are working somewhat and it will only get better!Oh and I can't believe it but i just ate a pint of the Lighten Up! Ben and Jerry's Half Baked. yummy, but seriously the whole pint! i never eat the whole pint! Must be the steriods! At least I chose not to get the Baskin Robbins tonight!
Tomorrow looks like we'll head out to the museum and catch the Mythic Creatures exhibit. Should be fun! Dragons, Unicorns and something else. thats about all oh and a voice class at my voice teachers apt,though since i actually haven't been taking lessons for a little while I won't be singing anything. NOr have i actually practiced for a while cause I'm lazy and just had other stuff on my mind and people in my house. Lately it's just been singing along with the radio or humming along, but my itch for singing has returned and it's gonna start getting loud in my apt again :) yay!
tis all for now!!!

Relax!

Well after a busy weeks of show seeing and traipsing about the city, my friend has left for Jersey to see some friends and then tomorrow he'll be leavin on a jet plane back to MI. A good time was had but man it was kind of exhausting! Damn those toxic drugs makin me tired lol. I have to say thanks to Mike for all the theater, dinners and BBQ! It was greatly appreciated, completely unnecessary to do all that but again appreciated! Can't thank him enough!
My ab muscles on the left side are still out of wack! But on the good side, I can lay on my right side to sleep and have been waking up on my stomach. But if I lay on the left it gets a bit sore.All that extra weight shifting to that side i suppose. I'd like it to stop so I can roll around trying to get to sleep as usual.
I thought yesterday would be my independence day from my hair, but I couldn't do it. Had it all planned out to use my roommates clippers and start shaving while Martina McBrides "Independence Day" played in the background. But I just couldn't do it and my roommate never found his clippers. I dunno what it is. It's a fallin out anyways every second of every day. And lovely amounts I pull out in the shower. So it's weird why i just can't buzz it off. I guess maybe since i only had short hair in 7th grade when the hair dresser got carried away talking to my mom and I ended up with boys cut. Or maybe the idea that what if something were to happen and it never grows back? well hell i got a couple wigs anyways. Not that thats really a comforting thought. I've just always had really thick hair and lots of it. It's not horrible yet. A tiny bit patchy in the temples and sides, but i've seen women with alopecia(sp?) much worse then what i have now who go about stylin their hair. Why does hair matter so much? UGh!!!!!
well guess thats the ramblings for today

It's the 4th!

Hope everyone has a Happy 4th of July!!!!